WATANABE SAORI 渡部沙織

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Watanabe Saori 渡部沙織

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Researcher Number	00828999
Other IDs
Affiliation (Current)	2025: 東京大学, 医科学研究所, 特任研究員
Affiliation (based on the past Project Information) *help	2021 – 2023: 東京大学, 医科学研究所, 特任研究員 2019 – 2020: 東京大学, 先端科学技術研究センター, 特別研究員
Review Section/Research Field	Principal Investigator Basic Section 08010:Sociology-related Except Principal Investigator Medium-sized Section 8:Sociology and related fields
Keywords	Principal Investigator 患者・市民参画 / 難病 / 質的研究 / 希少疾患 / ELSI / 希少難治性疾患 / 患者・市民参画（PPI/E） / PPI / 患者レジストリ / 患者の研究参画 … More / ジェネティック・シティズンシップ / 遺伝学的市民権 / 質的調査 / 患者・市民参画（PPI） … More Except Principal Investigator PPI / 患者／当事者・市民参画 / アーカイブズ / ヘルスケア政策史研究 Less

「ヘルスケア政策史研究」領域創成の基盤構築とアーカイブズ整備－PPIの実践と共に
- Principal Investigator
  
  後藤基行
- Project Period (FY)
  2023 – 2025
- Research Category
  
  Grant-in-Aid for Challenging Research (Pioneering)
- Review Section
  
  Medium-sized Section 8:Sociology and related fields
- Research Institution
  Ritsumeikan University
A qualitative study of ELSI and patient involvement for rare diseasesPrincipal Investigator
- Principal Investigator
  
  渡部沙織
- Project Period (FY)
  2022 – 2024
- Research Category
  
  Grant-in-Aid for Early-Career Scientists
- Review Section
  
  Basic Section 08010:Sociology-related
- Research Institution
  The University of Tokyo
A Study for Constructing the Patient-Centered Research based on Genetic CitizenshipPrincipal Investigator
- Principal Investigator
  
  Watanabe Saori
- Project Period (FY)
  2019 – 2022
- Research Category
  
  Grant-in-Aid for Early-Career Scientists
- Review Section
  
  Basic Section 08010:Sociology-related
- Research Institution
  The University of Tokyo

All 2023 2022 2021 2020 2019

All Journal Article Presentation Book

[Book] 難病政策の形成と変容：疾患名モデルによる公費医療のメカニズム2023
- Author(s)
  渡部沙織
- Total Pages
  196
- Publisher
  東京大学出版会
- Data Source
  KAKENHI-PROJECT-23K17288
[Book] 難病政策の形成と変容: 疾患名モデルによる公費医療のメカニズム2023
- Author(s)
  渡部沙織
- Total Pages
  224
- Publisher
  東京大学出版会
- ISBN
  4130664115
- Data Source
  KAKENHI-PROJECT-22K13524
[Book] 難病政策の形成と変容: 疾患名モデルによる公費医療のメカニズム2023
- Author(s)
  渡部沙織
- Total Pages
  224
- Publisher
  東京大学出版会
- ISBN
  4130664115
- Data Source
  KAKENHI-PROJECT-19K13877
[Book] 希少・難治性疾患領域患者協議会リーダーを対象としたオーラル・ヒストリープロジェクト：特定非営利活動法人難病支援ネット・ジャパン・伊藤たてお氏2021
- Author(s)
  西村由紀子, 江本駿, 渡部沙織, 佐藤信, 置塩文
- Publisher
  希少・難治性疾患領域患者協議会リーダーを対象としたオーラル・ヒストリープロジェクト調査報告書
- Data Source
  KAKENHI-PROJECT-19K13877
[Journal Article] General public’s understanding of rare diseases and their opinions on medical resource allocation in Japan: A cross-sectional study2023
- Author(s)
  Haruka Nakada, Saori Watanabe, Kyoko Takashima, Shohei Suzuki, Yuki Kawamura, Yutori Takai. Kenji Matsui, Keiichiro Yamamoto
- Journal Title
  
  Orphanet Journal of Rare Diseases
  
  Volume: 18(143) Pages: 112-112
- Data Source
  KAKENHI-PROJECT-23K17288
[Journal Article] 戦後の国立療養所・国立病院と難病：結核療養所から難病病床へ2023
- Author(s)
  渡部沙織
- Journal Title
  
  保健医療社会学論集
  
  Volume: 34(1) Pages: 25-33
- Data Source
  KAKENHI-PROJECT-22K13524
[Journal Article] General public’s understanding of rare diseases and their opinions on medical resource allocation in Japan: a cross-sectional study2023
- Author(s)
  Nakada Haruka、Watanabe Saori、Takashima Kyoko、Suzuki Shohei、Kawamura Yuki、Takai Yutori、Matsui Kenji、Yamamoto Keiichiro
- Journal Title
  
  Orphanet Journal of Rare Diseases
  
  Volume: 18 Issue: 1 Pages: 1-12
- DOI
  10.1186/s13023-023-02762-x
- Peer Reviewed / Open Access
- Data Source
  KAKENHI-PROJECT-22K13524, KAKENHI-PROJECT-19H01083, KAKENHI-PROJECT-23H00005
[Journal Article] 戦後の国立療養所・国立病院と難病：結核療養所から難病病床へ2023
- Author(s)
  渡部沙織
- Journal Title
  
  保健医療社会学論集
  
  Volume: 第34巻1号 Pages: 2533-2533
- Data Source
  KAKENHI-PROJECT-23K17288
[Journal Article] Attitudes towards human fetal tissue research: Survey of researchers and the public in Japan2023
- Author(s)
  Yui Hideki、Kamisato Ayako、Muto Kaori、Yashiro Yoshimi、Watanabe Saori、Kiya Yukitaka、Fujisawa Kumiko、Inoue Yusuke、Yamagata Zentaro
- Journal Title
  
  Regenerative Therapy
  
  Volume: 24 Pages: 78-84
- DOI
  10.1016/j.reth.2023.05.007
- Peer Reviewed / Open Access
- Data Source
  KAKENHI-PROJECT-22K13524
[Journal Article] Survey of Japanese researchers and the public regarding the culture of human embryos in vitro beyond 14 days2023
- Author(s)
  Yui Hideki、Muto Kaori、Yashiro Yoshimi、Watanabe Saori、Kiya Yukitaka、Fujisawa Kumiko、Harada Kana、Inoue Yusuke、Yamagata Zentaro
- Journal Title
  
  Stem Cell Reports
  
  Volume: 18 Issue: 4 Pages: 799-806
- DOI
  10.1016/j.stemcr.2023.02.005
- Peer Reviewed / Open Access
- Data Source
  KAKENHI-PROJECT-22K13317, KAKENHI-PROJECT-22K13524, KAKENHI-PROJECT-19K13877
[Journal Article] 全ゲノム解析等実行計画におけるELSI（倫理的法的社会的課題）・PPI（患者・市民参画）の取り組みと課題2022
- Author(s)
  渡部沙織, 武藤香織, 李怡然
- Journal Title
  
  Clinical Neuroscience
  
  Volume: 40(9) Pages: 1161-1165
- Data Source
  KAKENHI-PROJECT-22K13524
[Journal Article] Comparison of the 2021 International Society for Stem Cell Research (ISSCR) guidelines for “laboratory-based human stem cell research, embryo research, and related research activities” and the corresponding Japanese regulations2022
- Author(s)
  Hideki Yui, Kaori Muto, Yoshimi Yashiro, Saori Watanabe, Yukitaka Kiya, Ayako Kamisato, Yusuke Inoue, Zentaro Yamagata
- Journal Title
  
  Regenerative Therapy
  
  Volume: 21 Pages: 46-51
- DOI
  10.1016/j.reth.2022.05.002
- Peer Reviewed / Open Access
- Data Source
  KAKENHI-PROJECT-22K13524, KAKENHI-PROJECT-19K13877
[Journal Article] 全ゲノム解析等実行計画におけるELSI（倫理的法的社会的課題）・PPI（患者・市民参画）の取り組みと課題2022
- Author(s)
  渡部沙織, 武藤香織, 李怡然
- Journal Title
  
  Clinical Neuroscience
  
  Volume: 40(9) Pages: 1161-1165
- Data Source
  KAKENHI-PROJECT-19K13877
[Journal Article] 希少難治性疾患と再生医療のELSI（倫理的法的社会的課題）：ISSCRガイドラインを手がかりに2022
- Author(s)
  渡部沙織, 武藤香織, 八代嘉美
- Journal Title
  
  再生医療
  
  Volume: 21(1) Pages: 52-59
- Data Source
  KAKENHI-PROJECT-19K13877
[Journal Article] 国際幹細胞学会(ISSCR)2021年版ガイドラインにおける実験室で行うヒト幹細胞、胚関連研究の取り扱い：日本の関連指針との比較検討2022
- Author(s)
  由井秀樹, 武藤香織, 八代嘉美, 渡部沙織, 木矢幸孝, 神里彩子, 井上悠輔, 山縣然太郎
- Journal Title
  
  CBEL Report
  
  Volume: 4(2) Pages: 13-33
- Data Source
  KAKENHI-PROJECT-19K13877
[Journal Article] 難病政策の社会保障化に置ける政策形成と利用者負担：2013年度法案審議に関する考察2019
- Author(s)
  渡部沙織・安藤道人
- Journal Title
  
  立教経済学研究
  
  Volume: 73(1) Pages: 59-68
- Data Source
  KAKENHI-PROJECT-19K13877
[Presentation] 全ゲノム解析等実行計画における難病の説明同意文書と患者・市民参画（PPI）について2023
- Author(s)
  渡部沙織, 武藤香織, 李怡然
- Organizer
  「未診断疾患イニシアチブ（IRUD）: 希少未診断疾患に対する診断プログラムの開発に関する研究」2023年度ワークショップ
- Data Source
  KAKENHI-PROJECT-22K13524
[Presentation] 再生医療・幹細胞研究における患者・市民参画（PPI/E）とベネフィット・シェアリングの課題2023
- Author(s)
  渡部沙織, 武藤香織, 由井秀樹, 八代嘉美, 山縣然太郎
- Organizer
  第22回日本再生医療学会総会
- Data Source
  KAKENHI-PROJECT-19K13877
[Presentation] 再生医療・幹細胞研究における患者・市民参画（PPI/E）とベネフィット・シェアリングの課題2023
- Author(s)
  渡部沙織, 武藤香織, 由井秀樹, 八代嘉美, 山縣然太郎
- Organizer
  第22回日本再生医療学会総会
- Data Source
  KAKENHI-PROJECT-22K13524
[Presentation] Challenges for the ELSI in rare disease research: a qualitative study of Japanese stakeholders2022
- Author(s)
  Saori Watanabe, Kaori Muto, Yuki Kawamura, Kyoko Takashima
- Organizer
  European Human Genetics Conference 2022
- Int'l Joint Research
- Data Source
  KAKENHI-PROJECT-22K13524
[Presentation] Survey of the attitudes of the general public and patients in Japan toward research involving the culture of human embryos beyond 14 days2022
- Author(s)
  Hideki Yui, Kaori Muto, Yoshimi Yashiro, Saori Watanabe, Zentaro Yamagata
- Organizer
  ISSCR (International Society for Stem Cell Research) 2022 Annual Meeting
- Int'l Joint Research
- Data Source
  KAKENHI-PROJECT-22K13524
[Presentation] Patient and Public Involvement/Engagement (PPI/E) and Benefit Sharing in Stem Cell Research: A Survey of Patients in Japan2022
- Author(s)
  Saori Watanabe, Kaori Muto
- Organizer
  ISSCR (International Society for Stem Cell Research) 2022 Annual Meeting
- Int'l Joint Research
- Data Source
  KAKENHI-PROJECT-22K13524
[Presentation] Patient and Public Involvement/Engagement (PPI/E) and Benefit Sharing in Stem Cell Research: A Survey of Patients in Japan2022
- Author(s)
  Saori Watanabe, Kaori Muto
- Organizer
  ISSCR (International Society for Stem Cell Research) 2022 Annual Meeting
- Int'l Joint Research
- Data Source
  KAKENHI-PROJECT-19K13877
[Presentation] ヒト胚の培養可能期間をめぐる専門家・一般市民に対する意識調査2022
- Author(s)
  由井秀樹, 武藤香織, 八代嘉美, 渡部沙織, 木矢幸孝, 藤澤空美子
- Organizer
  第 34 回日本生命倫理学会年次学会
- Data Source
  KAKENHI-PROJECT-22K13524
[Presentation] ヒト胚の培養可能期間をめぐる専門家・一般市民に対する意識調査2022
- Author(s)
  由井秀樹, 武藤香織, 八代嘉美, 渡部沙織, 木矢幸孝, 藤澤空美子
- Organizer
  第 34 回日本生命倫理学会年次学会
- Data Source
  KAKENHI-PROJECT-19K13877
[Presentation] Challenges for the ELSI in rare disease research: a qualitative study of Japanese stakeholders2022
- Author(s)
  Saori Watanabe, Kaori Muto, Yuki Kawamura, Kyoko Takashima
- Organizer
  European Human Genetics Conference 2022
- Int'l Joint Research
- Data Source
  KAKENHI-PROJECT-19K13877
[Presentation] 希少難治性疾患のELSI課題に関する各ステークホルダーを対象とした質的調査2022
- Author(s)
  渡部沙織, 河村裕樹, 高島響子, 武藤香織
- Organizer
  第43回日本臨床薬理学会学術総会
- Data Source
  KAKENHI-PROJECT-19K13877
[Presentation] 希少難治性疾患のELSI課題に関する各ステークホルダーを対象とした質的調査2022
- Author(s)
  渡部沙織, 河村裕樹, 高島響子, 武藤香織
- Organizer
  第43回日本臨床薬理学会学術総会
- Data Source
  KAKENHI-PROJECT-22K13524
[Presentation] Survey of the attitudes of the general public and patients in Japan toward research involving the culture of human embryos beyond 14 days2022
- Author(s)
  Hideki Yui, Kaori Muto, Yoshimi Yashiro, Saori Watanabe, Zentaro Yamagata
- Organizer
  ISSCR (International Society for Stem Cell Research) 2022 Annual Meeting
- Int'l Joint Research
- Data Source
  KAKENHI-PROJECT-19K13877
[Presentation] Issues for Promoting Patient Engagement in Multi-Stakeholder Community2021
- Author(s)
  Saori Watanabe
- Organizer
  24th DIA Japan Annual Workshop for Clinical Data Management
- Invited
- Data Source
  KAKENHI-PROJECT-19K13877
[Presentation] 希少性・難治性疾患の患者組織と患者を中⼼とする研究参画のあり⽅：⽇本とアメリカの患者組織の事例から2020
- Author(s)
  渡部沙織
- Organizer
  第46回保健医療社会学会大会
- Data Source
  KAKENHI-PROJECT-19K13877
[Presentation] Rare Disease's Patient-Centered Research based on Genetic Citizenship: A Survey on Medical Researcher and Patient's Organization in Japan and the US.2019
- Author(s)
  Saori WATANABE
- Organizer
  2019 Annual Meeting of American Anthropological Association
- Int'l Joint Research
- Data Source
  KAKENHI-PROJECT-19K13877
[Presentation] ジェネティック・シティズンシップ（遺伝学的市民権）に基づく患者の研究参画に関する意識調査：研究者と患者会を対象として2019
- Author(s)
  渡部沙織
- Organizer
  日本人類遺伝学会第64回大会
- Data Source
  KAKENHI-PROJECT-19K13877
[Presentation] 患者を中心とする研究参画の制度的基盤に関する比較：アメリカ、EU、日本の希少性・難治性疾患政策の事例分析から2019
- Author(s)
  渡部沙織
- Organizer
  第92回日本社会学会大会
- Data Source
  KAKENHI-PROJECT-19K13877

1. 後藤基行 (70722396)

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2. 川端美季 (00624868)

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3. 舟津悠紀 (10937650)

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4. 松田亮三 (20260812)

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5. 竹島正 (20300957)

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6. 美馬達哉 (20324618)

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7. 佐藤沙織 (20782030)

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8. 由井秀樹 (40734984)

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9. 久保田明子 (40767589)

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10. 赤司友徳 (70774587)

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11. 松原洋子 (80303006)

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12. 原田香菜

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WATANABE SAORI 渡部 沙織

Watanabe Saori 渡部 沙織

Research Projects

Research Products

Co-Researchers

「ヘルスケア政策史研究」領域創成の基盤構築とアーカイブズ整備－PPIの実践と共に

Principal Investigator

Project Period (FY)

Research Category

Review Section

Research Institution

A qualitative study of ELSI and patient involvement for rare diseasesPrincipal Investigator

Principal Investigator

Project Period (FY)

Research Category

Review Section

Research Institution

A Study for Constructing the Patient-Centered Research based on Genetic CitizenshipPrincipal Investigator

Principal Investigator

Project Period (FY)

Research Category

Review Section

Research Institution

[Book] 難病政策の形成と変容：疾患名モデルによる公費医療のメカニズム2023

Author(s)

Total Pages

Publisher

Data Source

[Book] 難病政策の形成と変容: 疾患名モデルによる公費医療のメカニズム2023

Author(s)

Total Pages

Publisher

ISBN

Data Source

[Book] 難病政策の形成と変容: 疾患名モデルによる公費医療のメカニズム2023

Author(s)

Total Pages

Publisher

ISBN

Data Source

[Book] 希少・難治性疾患領域患者協議会リーダーを対象としたオーラル・ヒストリープロジェクト：特定非営利活動法人難病支援ネット・ジャパン・伊藤たてお氏2021

Author(s)

Publisher

Data Source

[Journal Article] General public’s understanding of rare diseases and their opinions on medical resource allocation in Japan: A cross-sectional study2023

Author(s)

Journal Title

Data Source

[Journal Article] 戦後の国立療養所・国立病院と難病：結核療養所から難病病床へ2023

Author(s)

Journal Title

Data Source

[Journal Article] General public’s understanding of rare diseases and their opinions on medical resource allocation in Japan: a cross-sectional study2023

Author(s)

Journal Title

DOI

Data Source

[Journal Article] 戦後の国立療養所・国立病院と難病：結核療養所から難病病床へ2023

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Data Source

[Journal Article] Attitudes towards human fetal tissue research: Survey of researchers and the public in Japan2023

Author(s)

Journal Title

DOI

Data Source

[Journal Article] Survey of Japanese researchers and the public regarding the culture of human embryos in vitro beyond 14 days2023

Author(s)

Journal Title

DOI

Data Source

[Journal Article] 全ゲノム解析等実行計画におけるELSI（倫理的法的社会的課題）・PPI（患者・市民参画）の取り組みと課題2022

Author(s)

Journal Title

Data Source

[Journal Article] Comparison of the 2021 International Society for Stem Cell Research (ISSCR) guidelines for “laboratory-based human stem cell research, embryo research, and related research activities” and the corresponding Japanese regulations2022

Author(s)

Journal Title

DOI

Data Source

WATANABE SAORI 渡部沙織

Watanabe Saori 渡部沙織