Nurses’ perception of child and family-based care : Focus on considerations and the initiation phase of home-based medical care for children

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Other Title
  • 『子どもと家族を主体としたケア』に関する看護師の認識の特徴
  • 『子どもと家族を主体としたケア』に関する看護師の認識の特徴 : 医療的ケアを必要とする子どもの在宅ケアを検討してから家庭で生活する時期に焦点を当てて
  • 『 コドモ ト カゾク オ シュタイ ト シタ ケア 』 ニ カンスル カンゴシ ノ ニンシキ ノ トクチョウ : イリョウテキ ケア オ ヒツヨウ ト スル コドモ ノ ザイタク ケア オ ケントウ シテ カラ カテイ デ セイカツ スル ジキ ニ ショウテン オ アテテ
  • —医療的ケアを必要とする子どもの在宅ケアを検討してから家庭で生活する時期に焦点を当てて—

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Abstract

<p> This study attempted to clarify nurses’ perceptions about “child and family-based care,” including the process of initiating home-based medical care for the child and family. We conducted a survey among nurses working in hospitals or home-visit settings. We defined “child and family-based care” based on existing perspectives on child-parent interaction and concepts of patient- and family-centered care prevalent in Western countries, wherein reciprocal engagement between children, families, and nurses is encouraged and where the child’s and family’s perspective and experience are respected. Although nurses recognized the importance of child and family-based care, few practiced it. Nurses reported difficulty in providing the child and family-based care, especially when teamwork or organized systems were required. The factor analysis revealed four significant factors: “collaboratively engaging in care while sharing perspectives and thoughts among the child, parent and nurses,” “respecting them as child, parent or family,” “providing necessary information and support for the child’s, parents’, and the family’s life,” and “ensuring the availability of opportunities for discussion.” Thus, further studies are necessary in order to draw a clearer picture of the care.</p>

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